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~hugs~ peace to You, too, ML
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Morphia, hugs you~~
Whenever I read this thread's update I feel your strength and sense of purpose.You are indeed a good Mom and in knowing your hope and love for Andrew makes me smile as a MOM too.
Continued prayers, as always, my best~
Debbie
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~hugs~ thank you for your kind words and your prayers, Debbie
sometimes, i feel very discouraged, but when i look at that boy, i know that there's no option but to push
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Andrew and i went to st. mike's today. he has a lung infection, an exacerbation of the pseudomonas aeruginosa {"pseudo"}, which has been growing in his lungs for years. pseudo is a very common bacterium in the lungs of people with cf, and Andrew has been treated with tobramycin, the drug of choice for it, since he was a teenager. once a person with cf begins to cultivate pseudo, it's assumed that he'll never get rid of it. tobramycin will keep it in the mild to moderate range.
i'll bet anything that Andrew's pseudo has reached the "infection" stage because he picked up more of it during his recent stay in the hospital. the best {read: worst} place to pick up pseudo is a hospital. they're rife with it. he's being treated with an antibiotic and we'll go back in two weeks to check him out.
his fev1, which is the benchmark indicator of lung function, has dropped from seventy-eight percent {his highest} to sixty percent. hopefully his lung function will increase once the pseudo is reined in.
hemoglobin up to eighty-five from seventy-nine.
very bad news on the donor front. the unit finally heard from toronto general today. after a myriad of tests, including abdominal ultrasound, CT scan and MRI, the transplant team has decided that the unit does not have a large enough liver mass in order to donate. this is non-negotiable. it's over.
i'm still in shock. i can barely type. Andrew and i had such a pleasant afternoon, and now he's got to hear this news.
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not large enough liver mass?
NOW they fucking tell you that his liver isn't large enough to donate? They figure this out AFTER they do all the tests and make you wait weeks and weeks for results?
i'm so angry i could cry... i can't imagine what you're going through....
stay strong, Morphie....something will happen... something -has- to happen
***********************************************************
Uncage me, i'm ready to fly.
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~tight hugs~ thanks, ~Beautiful*Disaster~
i just saw derek at the unit's
he was wondering about lost wages post surgery if he becomes Andrew's donor ~rme~ cocksucker
so i'll email him the link
the provincial body that oversees tranplants will re-emburse for parking costs, travel costs, lost wages, etc., to a certain maximum
i forget how much that is, but i remember that it's a fairly generous amount
but he said he'd have his information for the transplant team in the mail tomorrow
i'll believe that when i see it
anybody who could sit by for a year while his brother declined is not to be trusted, in my view
i look forward to his proving me wrong
TIME TO FUCKING GROW UP
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~tight hugs~ thank you, sweetie
for your kind words and your prayers
i am very appreciative of your support
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| I've been trying to catch up on the latest Morphie...I cannot believe its now Derek dragging his feet! You must be so unbelievably frustrated!! I know putting yourself through major surgery is hard, I appreciate that.....but I hope he realises that this is the life saving op Andrew needs and that he steps up and does the right thing here. As always, you're in my thoughts hon 'hugs you'
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As always dear heart, i'm praying for all of you.
Father in heaven, give Derek a push for us, help
him step up to the plate and do the right thing
now.
~~tight hugs~much love and prayers~
debra
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thanks Daisy ~tight hugs~ and debra ~tight hugs~
for always being there for me
i'm still in shock, i think
i just can't believe anything anymore
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