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Morphia
5/5/2009     
Member

so many of You have been so kind to me over the years and i appreciate it immensely. i met the best people here, just talking about my kids. many of You know about my son Andrew's battle with cystic fibrosis and are praying for him. thank you so very much. the past few weeks have been very rough. i only post this because many of You have asked how Andrew is doing and i thought this was the easiest way to explain the latest chapter. thank You for Your indulgence:

at about 8 o'clock on sunday morning, the unit woke up and saw Andrew's light on. he opened the door and found Andrew on the floor on his back, unconscious. stuff in Andrew's room was knocked down and scattered on the floor. the unit called an ambulance and then he called me. i went flying down the street in my pajama bottoms. one of the EMTs said that Andrew was seizing. i rode with him to Credit Valley Hospital, where they moved him into the Resuscitation Room. his jaws were locked in seizure and so he was given a muscle relaxant so that he could be intubated. the ER doctor said that Andrew wouldn't have lasted without this measure. i called the unit and he called Andrew's egg donor before heading to the hospital. at that point, Andrew was being moved to intensive care. CT scan again was normal. the egg donor, her wife, Mrs. egg donor, the unit and i went in to see Andrew together. he was no longer seizing at that point. he had not been sedated, so it was crucial that he wake up {fear of coma}.
at some point, he did begin to regain consciousness, but he immediately tried to remove the breathing tube, so he was lightly sedated.
alex and i went to see him last evening and he was awake!. he'd been taken off the ventilator at 5, but he had some god awful honkin' IV sticking out of his neck. he wanted a drink, so the nurse brought him some ice chips, which he handled well. i got him to sit up so that i could scratch his back for him. he always loved that, from the time he was a little boy, was always very tactile. i avoided the scratches that must have occurred when he fell. then i massaged his back and his shoulders with lotion and massaged the back of his head and his temples. his egg donor came in and the nurse removed the IV in Andrew's neck.
i was a wreck at work this morning, so i just put my mail up and went to the hospital. Andrew was understandably very cranky, just wanting to go home. i brought him a drink from Booster Juice. he likes "Mango Hurricane" and "Berry Berry". the unit showed up. finally, so did the ICU doc. an acceptable level of ammonia in the body is 40. Andrew's was 300. according to the unit, St. Mike's can't explain why Andrew had the severe mental confusion the last time he went to Emerge there, and the doctor at Credit Valley can't explain why Andrew was seizing on sunday morning, but.....hepatic encephalopathy {which means that the liver's malfuntioning is affecting the brain}, which can cause mental confusion, seizure and coma, is a result of liver failure. anyway, it's complicated, and i'm just a delivery boy. the Credit Valley doc thought that perhaps these two episodes of hepatic encephalopathy might move Andrew higher up the list for a liver. still waiting for a meeting with the transplant team.
the unit and i went to his place to gather up things that Andrew wanted and then Andrew called, saying he was being moved to St. Mike's.
and i guess that's it for now.

Post #885059 Back to top ▲
5/5/2009
  
Morphia
Member

so many of You have been so kind to me over the years and i appreciate it immensely. i met the best people here, just talking about my kids. many of You know about my son Andrew's battle with cystic fibrosis and are praying for him. thank you so very much. the past few weeks have been very rough. i only post this because many of You have asked how Andrew is doing and i thought this was the easiest way to explain the latest chapter. thank You for Your indulgence:

at about 8 o'clock on sunday morning, the unit woke up and saw Andrew's light on. he opened the door and found Andrew on the floor on his back, unconscious. stuff in Andrew's room was knocked down and scattered on the floor. the unit called an ambulance and then he called me. i went flying down the street in my pajama bottoms. one of the EMTs said that Andrew was seizing. i rode with him to Credit Valley Hospital, where they moved him into the Resuscitation Room. his jaws were locked in seizure and so he was given a muscle relaxant so that he could be intubated. the ER doctor said that Andrew wouldn't have lasted without this measure. i called the unit and he called Andrew's egg donor before heading to the hospital. at that point, Andrew was being moved to intensive care. CT scan again was normal. the egg donor, her wife, Mrs. egg donor, the unit and i went in to see Andrew together. he was no longer seizing at that point. he had not been sedated, so it was crucial that he wake up {fear of coma}.
at some point, he did begin to regain consciousness, but he immediately tried to remove the breathing tube, so he was lightly sedated.
alex and i went to see him last evening and he was awake!. he'd been taken off the ventilator at 5, but he had some god awful honkin' IV sticking out of his neck. he wanted a drink, so the nurse brought him some ice chips, which he handled well. i got him to sit up so that i could scratch his back for him. he always loved that, from the time he was a little boy, was always very tactile. i avoided the scratches that must have occurred when he fell. then i massaged his back and his shoulders with lotion and massaged the back of his head and his temples. his egg donor came in and the nurse removed the IV in Andrew's neck.
i was a wreck at work this morning, so i just put my mail up and went to the hospital. Andrew was understandably very cranky, just wanting to go home. i brought him a drink from Booster Juice. he likes "Mango Hurricane" and "Berry Berry". the unit showed up. finally, so did the ICU doc. an acceptable level of ammonia in the body is 40. Andrew's was 300. according to the unit, St. Mike's can't explain why Andrew had the severe mental confusion the last time he went to Emerge there, and the doctor at Credit Valley can't explain why Andrew was seizing on sunday morning, but.....hepatic encephalopathy {which means that the liver's malfuntioning is affecting the brain}, which can cause mental confusion, seizure and coma, is a result of liver failure. anyway, it's complicated, and i'm just a delivery boy. the Credit Valley doc thought that perhaps these two episodes of hepatic encephalopathy might move Andrew higher up the list for a liver. still waiting for a meeting with the transplant team.
the unit and i went to his place to gather up things that Andrew wanted and then Andrew called, saying he was being moved to St. Mike's.
and i guess that's it for now.

Post #885059
Morphia
5/5/2009     
Member thank you very much, Daisy ~hugs~
i agree with your thoughts on organ donation.
the coooooooooooool thing is that because there aren't enough cadaveric livers to fill the need for transplants, Living Donor Liver Transplants are performed, too. approximately half of the donor's liver is transplanted into the recipient's liver, after his diseased liver has been removed, of course! within a couple of months, both halves of liver have grown to normal size and are fully functional! the donor doesn't even have to be a blood relative. the most important thing is that his blood type is compatible. i'm type O, so i can donate to anyone {the rhesus factor has no bearing}. one of Andrew's friends has also offered half of his liver. there's a screening process, too, of course.
thanks again ~hugs~
Post #885062 Back to top ▲
5/5/2009
  
Morphia
Member
thank you very much, Daisy ~hugs~
i agree with your thoughts on organ donation.
the coooooooooooool thing is that because there aren't enough cadaveric livers to fill the need for transplants, Living Donor Liver Transplants are performed, too. approximately half of the donor's liver is transplanted into the recipient's liver, after his diseased liver has been removed, of course! within a couple of months, both halves of liver have grown to normal size and are fully functional! the donor doesn't even have to be a blood relative. the most important thing is that his blood type is compatible. i'm type O, so i can donate to anyone {the rhesus factor has no bearing}. one of Andrew's friends has also offered half of his liver. there's a screening process, too, of course.
thanks again ~hugs~
Post #885062
boda
5/5/2009     
boda
Graphics
Graphics
Morphie.

*just squeezes you tighter and tighter* Thank you for this latest update on Andrew.

Please know he, you and the family continue to be in my thoughts and prayers and i truly hope that he is moved up the transplant list and a donor is found soon.

i have known you these many long years and your love for him and all of your children has been never ending, completely unconditional, and a beautiful thing to behold.

As i've said before and will continue to say, if you need me..call me, even if it's just to vent the pure frustration such circumstances cause.

i love you babes...always.

bev
Post #885065 Back to top ▲
5/5/2009
  
boda
Graphics
Graphics
Morphie.

*just squeezes you tighter and tighter* Thank you for this latest update on Andrew.

Please know he, you and the family continue to be in my thoughts and prayers and i truly hope that he is moved up the transplant list and a donor is found soon.

i have known you these many long years and your love for him and all of your children has been never ending, completely unconditional, and a beautiful thing to behold.

As i've said before and will continue to say, if you need me..call me, even if it's just to vent the pure frustration such circumstances cause.

i love you babes...always.

bev
Post #885065
Morphia
5/5/2009     
Member thank you so much for your kind words, bo, and for your prayers ~tightest of hugs~ can i even call you if i've had a few drinks? ~s~ i just emailed one of my neighbours and asked her if i could "borrow" a bottle wine. for medicinal purposes, of course ~s~
Post #885066 Back to top ▲
5/5/2009
  
Morphia
Member
thank you so much for your kind words, bo, and for your prayers ~tightest of hugs~ can i even call you if i've had a few drinks? ~s~ i just emailed one of my neighbours and asked her if i could "borrow" a bottle wine. for medicinal purposes, of course ~s~
Post #885066
boda
5/5/2009     
Graphics
Graphics
Morphie, babes.

You can call me..anytime, day or night!! Drinking or not!

Just call when you want/need! *squish*

Post #885067 Back to top ▲
5/5/2009
  
boda
Graphics
Graphics
Morphie, babes.

You can call me..anytime, day or night!! Drinking or not!

Just call when you want/need! *squish*

Post #885067
Morphia
5/5/2009     
Member ~squinch~ thanks, deary
Post #885068 Back to top ▲
5/5/2009
  
Morphia
Member
~squinch~ thanks, deary
Post #885068
SanctimoniousPrick
5/5/2009     
SanctimoniousPrick
Member
My sweet Morphia..
a gypsie saying for you..

When we gaze through that magnificent evening sky - and a single blinking star arouses your attention...it is the one of whom was loved the most - who loves us the most..
who tells us in their infinite ways that all is well in their realm - and that you need not to worry about them - and that they will blink for you each and every night to let you know that they now look after you from a distance away and that they will never ever forget you..
Now he will look over you..
All is made well, - if in the most mysterious ways..
Nothing good leaves us..
Unless we allow it to..



I know you have done so much morphia..
My best and warmest - and yes, do feel the pain..
eventually it sets us free...




Edited: 5/5/2009 by SanctimoniousPrick
Post #885071 Back to top ▲
5/5/2009
  
My sweet Morphia..
a gypsie saying for you..

When we gaze through that magnificent evening sky - and a single blinking star arouses your attention...it is the one of whom was loved the most - who loves us the most..
who tells us in their infinite ways that all is well in their realm - and that you need not to worry about them - and that they will blink for you each and every night to let you know that they now look after you from a distance away and that they will never ever forget you..
Now he will look over you..
All is made well, - if in the most mysterious ways..
Nothing good leaves us..
Unless we allow it to..



I know you have done so much morphia..
My best and warmest - and yes, do feel the pain..
eventually it sets us free...




Edited: 5/5/2009 by SanctimoniousPrick
Post #885071
Debbie
5/5/2009     
Member Morphia,
My heartfelt prayers are with you.You have been such a wonderful Mom, Andrew knows that and his strength will come from you as it always has. Tight hug, thinking of you~
Post #885078 Back to top ▲
5/5/2009
  
Debbie
Member
Morphia,
My heartfelt prayers are with you.You have been such a wonderful Mom, Andrew knows that and his strength will come from you as it always has. Tight hug, thinking of you~
Post #885078
Morphia
5/6/2009     
Member merci bien, Monsieur. j'aime beaucoup tes mots.

thank you, Debbie, for your continued support ~hugs~











~edited to correct French grammar~






Edited: 5/6/2009 by Morphia
Post #885140 Back to top ▲
5/6/2009
  
Morphia
Member
merci bien, Monsieur. j'aime beaucoup tes mots.

thank you, Debbie, for your continued support ~hugs~











~edited to correct French grammar~






Edited: 5/6/2009 by Morphia
Post #885140
Morphia
5/12/2009     
Member

the unit, alex, nicholas and i went to the hospital yesterday to see Andrew. he's back on the sixth floor, Respirology. it was great to hear him complaining and swearing! {never thought i'd say that}

the medical social worker stopped by and we had a good talk with her. she said that after Andrew's first two episodes of hepatic encephalopathy {the liver's malfunctioning affecting the brain}, because they happened when he was NOT in the hospital, the doctors were very much concerned with external stimuli to possibly explain what had happened. however, since the third episode happened while he was IN the hospital, the focus is now on his medication. ok. you'll excuse me now while i make an "excited utterance" {this is a legal term. i heard it on nancy grace}. DUHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!

however, she did explain that Andrew's illness is manifesting in an atypical way, specifically, the unfortunate ease with which he can slip into a coma, even while being closely monitored in the Step Up unit, as happened on saturday. she said that the course that his illness has taken in the past month is NOT seen..

i pointed out the obvious, that Andrew wanted to come home and that everybody wanted him to come home, but that of course, we wanted him to be well enough to be at home. she said that the hospital is in no rush to discharge him, and that they are working to tweak his medication, specifically lactulose {which aids the body in dispelling toxins which the damaged liver is unable to process}.

on the subject of liver transplant, i know that it was necessary for her to advise us that it's possible that Andrew may not qualify.
but. he has to, so i'll move on.

the transplant team at toronto general hospital is well aware of Andrew and the severity of his illness. Andrew's gastroenterologist, who is such a hero to me, has been in contact with the team. i asked how long it can take for a person to be assessed and the social worker told me "weeks or months". Andrew was only told last month that he was being recommended for transplant, but hopefully, an assessment is imminent. if there is one good thing to come out of the horror of the past weeks, it's that because it's crystal clear how sick Andrew is, he will likely be assessed more quickly and end up further up on the transplant list.

he's lost so much weight. much of it had to be lost, because it was a life threatening pooling of fluid.

his beautiful brown eyes. that gaunt face. break my heart.

Post #885983 Back to top ▲
5/12/2009
  
Morphia
Member

the unit, alex, nicholas and i went to the hospital yesterday to see Andrew. he's back on the sixth floor, Respirology. it was great to hear him complaining and swearing! {never thought i'd say that}

the medical social worker stopped by and we had a good talk with her. she said that after Andrew's first two episodes of hepatic encephalopathy {the liver's malfunctioning affecting the brain}, because they happened when he was NOT in the hospital, the doctors were very much concerned with external stimuli to possibly explain what had happened. however, since the third episode happened while he was IN the hospital, the focus is now on his medication. ok. you'll excuse me now while i make an "excited utterance" {this is a legal term. i heard it on nancy grace}. DUHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!

however, she did explain that Andrew's illness is manifesting in an atypical way, specifically, the unfortunate ease with which he can slip into a coma, even while being closely monitored in the Step Up unit, as happened on saturday. she said that the course that his illness has taken in the past month is NOT seen..

i pointed out the obvious, that Andrew wanted to come home and that everybody wanted him to come home, but that of course, we wanted him to be well enough to be at home. she said that the hospital is in no rush to discharge him, and that they are working to tweak his medication, specifically lactulose {which aids the body in dispelling toxins which the damaged liver is unable to process}.

on the subject of liver transplant, i know that it was necessary for her to advise us that it's possible that Andrew may not qualify.
but. he has to, so i'll move on.

the transplant team at toronto general hospital is well aware of Andrew and the severity of his illness. Andrew's gastroenterologist, who is such a hero to me, has been in contact with the team. i asked how long it can take for a person to be assessed and the social worker told me "weeks or months". Andrew was only told last month that he was being recommended for transplant, but hopefully, an assessment is imminent. if there is one good thing to come out of the horror of the past weeks, it's that because it's crystal clear how sick Andrew is, he will likely be assessed more quickly and end up further up on the transplant list.

he's lost so much weight. much of it had to be lost, because it was a life threatening pooling of fluid.

his beautiful brown eyes. that gaunt face. break my heart.

Post #885983
Morphia
5/12/2009     
Member

thank you so very much for your kind words, Kelly ~tight hugs~ Lisa

Post #885989 Back to top ▲
5/12/2009
  
Morphia
Member

thank you so very much for your kind words, Kelly ~tight hugs~ Lisa

Post #885989
db
5/12/2009     
db
Member
Morphia,

i just wanted you to know that i have been keeping you and Andrew in my daily
prayers. i know what you are going through as i have been there with my own
brother as you may know. i am hoping and praying that a liver is found soon and
your worries can stop.
Am sending you love and hugs even though you can't feel them, they are here
for you. Hold on brave woman, the Lord is at your back...

love, debra
Post #885991 Back to top ▲
5/12/2009
  
db
Member
Morphia,

i just wanted you to know that i have been keeping you and Andrew in my daily
prayers. i know what you are going through as i have been there with my own
brother as you may know. i am hoping and praying that a liver is found soon and
your worries can stop.
Am sending you love and hugs even though you can't feel them, they are here
for you. Hold on brave woman, the Lord is at your back...

love, debra
Post #885991
Morphia
5/12/2009     
Member

thank you so very much for your prayers and your continued support. i never forget people who are kind to me when things are tough

~tightest hugs~ db


thank you, ML, so very much

Post #885995 Back to top ▲
5/12/2009
  
Morphia
Member

thank you so very much for your prayers and your continued support. i never forget people who are kind to me when things are tough

~tightest hugs~ db


thank you, ML, so very much

Post #885995
Morphia
5/22/2009     
Member i called the head of Respirology, but she is out of the hospital today. i was referred to dr. "s". i told her that i had questions and concerns. she interrupted me relentlessly at the beginning, which i hate. at one point, she said something like, we seem to be on the same page. i don't know what we're arguing about. well, i thought, if you would let me say more than three words at a time...i persisted in getting my points across and gradually, she seemed to realize that i was not retarded and she hypered down.

1. i told her that since Andrew was in a bout of encephalopathy at six am on tuesday, wandering in to other patients' rooms, i was very concerned that he might leave the hospital in a stupor and be grievously harmed. i asked how often Andrew was checked on. she told me that he was checked on when meds were given to him, etc. i told her that that was not enough, that he needed to be checked often. she told me that there was not enough staff to do that.
however, to my great relief, she called me back and told me that Andrew has been assigned a sitter, twenty-four hours a day, since tuesday, and that there was no plan in the foreseeable future to stop this practice.

2. i asked if all of the nurses assigned to Andrew were aware that he is prone to bouts of encephalopathy and if they knew what the symptoms were. she assured me in the positive to both questions.

3. i told her that when the unit was leaving the hospital on tuesday {Andrew had had another bout that morning}, one of the staff asked him, "Mr. Unit, would you please ask your son to behave?". i told her that this was a ridiculous thing to say, given the fact that Andrew is NOT responsible for what he says or does when his poor brain is being affected by the liver's malfunctioning. i said that such a statement were just as ridiculous as if said to someone in a psychosis, because encephalopathy is a neuro-psychiatric state. she agreed whole heartedly with me and said that no matter who had said this to the unit, that EVERYONE would be reminded that Andrew has no control over anything when he is having a bout of encephalopathy.

4. i said that when the unit arrived at the hospital on tuesday, he found Andrew LUCID and still restrained. she argued that because Andrew was being verbally abusive to the staff, that he was still encephalopathic.

she told me that it was great that i called with my concerns and said that lots of patients don't have family members stepping forward. and i thought, honey, i ain't going anywhere, so you TAKE GOOD CARE OF ANDREW.

i told her that i wanted to speak to the nurse manager and she gave me her number. i called "k" and had a much easier conversation with her. i went over the same points. she understood and agreed with my concerns about Andrew's safety when he was having an episode and assured me that for the foreseeable future, Andrew would have a sitter in his room twenty-four hours a day. she agreed that what was said to the unit, about asking Andrew to "behave" was grotesquely out of line and would be dealt with. in opposition to what dr. "s" had said, "k" said that when the unit arrived at the hospital on tuesday, Andrew was JUST coming out of his bout of encephalopathy. i told her that i thought it was horrible that a person who was lucid would still be restrained and she told me that the policy is of minimal restraint, only when absolutely necessary, and that Andrew was still restrained when the unit arrived because Andrew was just "coming to" at that point.

Edited: 5/22/2009 by Morphia
Post #887262 Back to top ▲
5/22/2009
  
Morphia
Member
i called the head of Respirology, but she is out of the hospital today. i was referred to dr. "s". i told her that i had questions and concerns. she interrupted me relentlessly at the beginning, which i hate. at one point, she said something like, we seem to be on the same page. i don't know what we're arguing about. well, i thought, if you would let me say more than three words at a time...i persisted in getting my points across and gradually, she seemed to realize that i was not retarded and she hypered down.

1. i told her that since Andrew was in a bout of encephalopathy at six am on tuesday, wandering in to other patients' rooms, i was very concerned that he might leave the hospital in a stupor and be grievously harmed. i asked how often Andrew was checked on. she told me that he was checked on when meds were given to him, etc. i told her that that was not enough, that he needed to be checked often. she told me that there was not enough staff to do that.
however, to my great relief, she called me back and told me that Andrew has been assigned a sitter, twenty-four hours a day, since tuesday, and that there was no plan in the foreseeable future to stop this practice.

2. i asked if all of the nurses assigned to Andrew were aware that he is prone to bouts of encephalopathy and if they knew what the symptoms were. she assured me in the positive to both questions.

3. i told her that when the unit was leaving the hospital on tuesday {Andrew had had another bout that morning}, one of the staff asked him, "Mr. Unit, would you please ask your son to behave?". i told her that this was a ridiculous thing to say, given the fact that Andrew is NOT responsible for what he says or does when his poor brain is being affected by the liver's malfunctioning. i said that such a statement were just as ridiculous as if said to someone in a psychosis, because encephalopathy is a neuro-psychiatric state. she agreed whole heartedly with me and said that no matter who had said this to the unit, that EVERYONE would be reminded that Andrew has no control over anything when he is having a bout of encephalopathy.

4. i said that when the unit arrived at the hospital on tuesday, he found Andrew LUCID and still restrained. she argued that because Andrew was being verbally abusive to the staff, that he was still encephalopathic.

she told me that it was great that i called with my concerns and said that lots of patients don't have family members stepping forward. and i thought, honey, i ain't going anywhere, so you TAKE GOOD CARE OF ANDREW.

i told her that i wanted to speak to the nurse manager and she gave me her number. i called "k" and had a much easier conversation with her. i went over the same points. she understood and agreed with my concerns about Andrew's safety when he was having an episode and assured me that for the foreseeable future, Andrew would have a sitter in his room twenty-four hours a day. she agreed that what was said to the unit, about asking Andrew to "behave" was grotesquely out of line and would be dealt with. in opposition to what dr. "s" had said, "k" said that when the unit arrived at the hospital on tuesday, Andrew was JUST coming out of his bout of encephalopathy. i told her that i thought it was horrible that a person who was lucid would still be restrained and she told me that the policy is of minimal restraint, only when absolutely necessary, and that Andrew was still restrained when the unit arrived because Andrew was just "coming to" at that point.

Edited: 5/22/2009 by Morphia
Post #887262
Debbie
5/22/2009     
Member Please know that others do care about you and Andrew, hugs you tight, thoughts and prayers follow you both~
Post #887277 Back to top ▲
5/22/2009
  
Debbie
Member
Please know that others do care about you and Andrew, hugs you tight, thoughts and prayers follow you both~
Post #887277
kaos
5/22/2009     
Member i hope things turn for the better real soon and that a donor is found and everything runs smoothly

i'm keeping you all in my thoughts and heart <3

love you my rollerblading buddy *smooch*

Post #887282 Back to top ▲
5/22/2009
  
kaos
Member
i hope things turn for the better real soon and that a donor is found and everything runs smoothly

i'm keeping you all in my thoughts and heart <3

love you my rollerblading buddy *smooch*

Post #887282
Morphia
5/22/2009     
Member

thank you so very much, ladies, for your kindness and your prayers

Post #887307 Back to top ▲
5/22/2009
  
Morphia
Member

thank you so very much, ladies, for your kindness and your prayers

Post #887307
boda
5/23/2009     
boda
Graphics
Graphics
Morphie,

Thank you for the update babes *soft yet tight hug*

i know this is an extremely trying time for you and the family.

Please please know i am always just a phone call away and feel free to pick it up.

And also know that you, Andrew and the entire family continue to be in my prayers.

love you babes

bev
Post #887328 Back to top ▲
5/23/2009
  
boda
Graphics
Graphics
Morphie,

Thank you for the update babes *soft yet tight hug*

i know this is an extremely trying time for you and the family.

Please please know i am always just a phone call away and feel free to pick it up.

And also know that you, Andrew and the entire family continue to be in my prayers.

love you babes

bev
Post #887328
Morphia
5/23/2009     
Member

dearest debra and bev ~tight hugs~ thank you so much for your continued support
it means so much to me

Post #887351 Back to top ▲
5/23/2009
  
Morphia
Member

dearest debra and bev ~tight hugs~ thank you so much for your continued support
it means so much to me

Post #887351
Morphia
5/29/2009     
Member

thursday was a beautiful day in the rain.
Andrew got a pass to come home for a few hours!
i picked him up at ten a.m. i felt honoured to be the one to do so. like i was bringing a brand new baby home from the hospital.
we stopped at best buy and he bought himself a laptop and a tv. unfortunately, the tv that he had had in his room at the unit's had been damaged when he had the bout of encephalopathy which had left him seizing and unconscious. both items were on sale and he got an extra one hundred dollars off, plus a fifty dollar credit to his visa because his obnoxious stepmom {me!} pointed out that the service had been less than wonderful.
we broke nicholas out of school for the occasion! picked him up on the way to the unit's.
i called the insurance company regarding the broken tv, but the unit's deductible was too high for a claim.
nicholas played the guitar while Andrew put his room back together. the unit went out for pizza and a panzerotti and then Andrew took a bath.

simple pleasures magnified in brilliance against the preceding dark days.

i picked alex up from school and brought her to the unit's so that she could visit with Andrew.
all too soon, the time was gone and i had to take Andrew back to the hospital. however, we found when we returned that he will be going to Toronto General on tuesday next for an ultrasound and a consult with the anaesthetist. PROGRESS!!!!! the unit's going to go with him, and hopefully, Andrew will be able to come home with the unit overnight!!!!!
if all goes well, the hospital is looking toward discharging Andrew next friday.
i left Andrew to discover his new laptop.
it was a jewel of a day and we want more of them. many, many more.



Edited: 11/14/2009 by Morphia
Post #888036 Back to top ▲
5/29/2009
  
Morphia
Member

thursday was a beautiful day in the rain.
Andrew got a pass to come home for a few hours!
i picked him up at ten a.m. i felt honoured to be the one to do so. like i was bringing a brand new baby home from the hospital.
we stopped at best buy and he bought himself a laptop and a tv. unfortunately, the tv that he had had in his room at the unit's had been damaged when he had the bout of encephalopathy which had left him seizing and unconscious. both items were on sale and he got an extra one hundred dollars off, plus a fifty dollar credit to his visa because his obnoxious stepmom {me!} pointed out that the service had been less than wonderful.
we broke nicholas out of school for the occasion! picked him up on the way to the unit's.
i called the insurance company regarding the broken tv, but the unit's deductible was too high for a claim.
nicholas played the guitar while Andrew put his room back together. the unit went out for pizza and a panzerotti and then Andrew took a bath.

simple pleasures magnified in brilliance against the preceding dark days.

i picked alex up from school and brought her to the unit's so that she could visit with Andrew.
all too soon, the time was gone and i had to take Andrew back to the hospital. however, we found when we returned that he will be going to Toronto General on tuesday next for an ultrasound and a consult with the anaesthetist. PROGRESS!!!!! the unit's going to go with him, and hopefully, Andrew will be able to come home with the unit overnight!!!!!
if all goes well, the hospital is looking toward discharging Andrew next friday.
i left Andrew to discover his new laptop.
it was a jewel of a day and we want more of them. many, many more.



Edited: 11/14/2009 by Morphia
Post #888036
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